Identify, Engage, Recruit & Retain to Deliver Meaningful
Patient Impact

Driving Patient Awareness, Enrollment & Retention in Hard-to-Reach Populations Through AI-Driven Identification, Patient-Centric Designs & Early Advocacy Collaboration

Every year, billions are invested in clinical research - yet many trials falter when patients are difficult to identify, engage, or retain. Dispersed, underserved, or otherwise hard-to-reach populations often face barriers that slow enrollment and put trial outcomes at risk. For studies involving small, scattered, or underrepresented groups, traditional recruitment approaches fall short. Patients may be hidden from conventional databases, located across multiple regions, or require specialized expertise to engage effectively.

Combined with complex protocols and rising expectations for patient-centric approaches, it’s clear: new strategies are needed to ensure enrollment, retention, and ultimately, successful trial delivery.

Now in its second year, the Patient Recruitment for Rare Disease Trials Summit is the premier forum dedicated to closing this gap. Designed for leaders in Patient Recruitment, Clinical Operations, Patient Advocacy, and Medical Affairs, this summit unites innovators reshaping access to clinical trials across the entire patient journey.

Over three focused days, you’ll explore cutting-edge strategies spanning early patient identification, AI-driven recruitment, and decentralized, patient-centric trial models that support participants from diagnosis through long-term retention. Now is the time to accelerate creative recruitment strategies, deepen early patient engagement, and harness innovative technologies to ensure that no patient - no matter how hard to reach - is left behind in the race for transformative therapies.

2025 Agenda Now Live:

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2025 World-Class Speaker Faculty Includes:

Angel Akinbinu

Director, Trial Equity & Representation

Takeda

Brittany Davis

patient advocacy

Avalyn Pharmaceuticals

Charles Shiner

VP Marketing

Stealth Biotech, P.B.C

Diego Cortina

Director, Global Pipeline & Value Evidence Strategy

Biogen

Fatima Scipione

VP, Global Patient Affairs

Blueprint Medicines

Attend as a team. Leave with a strategy.

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Align Strategy Across the Entire Patient Journey

Unite cross-functional teams around shared challenges - from early patient identification and tailored trial design to education, retention, and reimbursement - for a more seamless, patient-first approach to clinical delivery.

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Tackle Cross-Departmental Challenges in One Place

Bring together colleagues from clinical operations, patient engagement, medical affairs, and market access to break down silos and address interconnected pain points with actionable, cross-functional solutions.

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Benchmark Against Industry Innovators

Learn directly from senior leaders at companies like Takeda, Biogen, Alexion, and Blueprint Medicines and see what’s working across the most complex trial landscapes - then adapt those strategies for your own programs.

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Empower Your Team with Fresh Tools & Strategies

From AI-driven identification and decentralized trial platforms to advocacy partnerships and flexible trial designs, equip your team with practical tactics that enhance patient access, boost retention, and drive trial success.

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Maximize Value with Group Savings

Secure up to 20% off your pass with team discounts - and ensure your entire team walks away aligned, inspired, and ready to deliver on your rare disease trial goals.