Your Comprehensive Guide to the Patient Recruitment & Retention Summit
Whether you were running a trial for a rare neurological disorder, designing a global gene therapy study, or building support programs around highly stratified populations the 2nd Patient Recruitment & Retention Summit was your strategic launchpad for overcoming the toughest access barriers in clinical research.
Who Attended?
This summit united cross-functional leaders driving recruitment and retention for dispersed, underserved, and hard-to-reach patient populations. If you were involved in designing, running, or supporting trials where conventional recruitment models fell short, this event was built for you.
In the room were those working in:
- Patient Recruitment & Patient Advocacy
- Medical Affairs & Clinical Operations
- Clinical Trial Tech & Decentralized Trial Teams
- Market Access, Reimbursement, and Trial Logistics
Attendees were joined by 70+ leaders from companies like Biogen, Takeda, Teva Pharmaceuticals, Genentech, Tenaya Therapeutics, and Sarepta Therapeutics, as they shared candid lessons learned - what worked, what hadn't, and how to successfully deliver for patients others couldn't reach.
What You Learnt:
Across three content-rich days, you gained practical, cross-functional strategies to strengthen recruitment and retention at every stage of the trial journey:
Increasing Identification & Accelerating Enrolment
Master patient-finding in dispersed and underrepresented groups using digital platforms, AI-driven patient-matching, and global registries. You learn how to break through bottlenecks by partnering with advocacy networks and tailoring outreach to communities often invisible to conventional channels.
Empowering Education & Strengthening Advocacy
Discovering how to co-create culturally relevant, linguistically accessible education programs with patients and caregivers. You saw how advocacy groups and grassroots networks could help build trust, drive engagement, and remove barriers from first contact through long-term support.
Optimizing Trial Design & Improving Retention
Exploring adaptive, hybrid, and decentralized designs that minimized patient burden while maximizing trial quality. You took home proven retention strategies, from remote monitoring and telehealth to personalized communication and flexible scheduling.
Accelerating Reimbursement & Enabling Secure Data Sharing
Staying ahead of evolving regulatory expectations and reimbursement models. You saw how secure, compliant data-sharing could unlock real-world evidence, foster sponsor–payer collaboration, and speed market access for life-changing therapies.