Matt Hay

Company: Alexion Pharmaceuticals

Job title: Director, U.S. Patient Advocacy

Seminars:

Decentralized Trials in Rare Disease: What’s Working & What’s Not? 1:45 pm

Which aspects of decentralized trials (e.g. home nursing, remote monitoring, eConsent) are proving most viable in rare indications? Where do challenges remain – such as diagnostics, sample collection, or maintaining data integrity? How can we strike the right balance between virtual convenience and medical oversight?Read more

day: Day Two

Panel Discussion: From Patient Voice to Scientific Value: How Patient Engagement Sparks Innovation 2:00 pm

Redefining engagement by clarifying what meaningful patient involvement in R&D requires structurally, culturally, and scientifically Shifting power by enabling true partnership that redistributes influence across trial design, evidence generation, and development priorities Integrating patient input early in development to improve trial design, accelerate enrollment, and generate real-world relevant evidence Centering equity in engagement strategies to…Read more

day: Day One PM